Today was a straightforward appointment day. The normal procedure is that a car arrives to take me to the hospital and we sit in traffic jams for an hour or so. On arrival I give blood and am given a copy of the immediately available results to take in when I see the consultant, Emma. I then sit around for a while reading the paper,especially if it is very busy like today. When I see her I tell her how I think things are going and list any new or ongoing symptoms since last week. She then adjusts my treatment if required. If the blood results which come in later indicate any other changes are required, I'll be phoned by Heidi, the transplant coordinator with further instructions. This happened last week when I was asked to reduce my Cyclosporin slightly. Then I order a car to get me home again.
Rather annoyingly, I was due to stop the steroids I have been taking to control the GVHD rash today but woke up to a new rash on my shins so I'm on them for another week. Fortunately it is a very low dose.
That's it really. My blog is in danger of get rather boring but I suppose I should look on that as a good thing. I was chatting to a patient who has just passed his 100 days since transplant and realise that it goes on like this for some time yet.
Anyway, it's enough to tire me out so I'll sign off now. Next appointment next Monday as usual.