Well that's another of my Monday appointments over with no major dramas. I had a bit of a Cyclosporin spike last week so was called and told to miss a few doses and then reduce the regular dose - all part of the fine tuning! I'll find out today (Tuesday) if my levels are still high and I need to reduce the dose further. I have been asked to collect my urine over a 24 hour period to check my kidney function - mmm that will be fun.
They're also weaning me off the steroid which I've been taking to control the GVHD so I'm now on one 5mg dose every other day, and have been given tiny 1mg tablets so that we can fine tune further if required. I still have the rash which is evidence of the GVHD in various places on my body but it has calmed down, with the steroid and steroid cream I use.
My hair is showing good signs of growing back. It's a bit strange as it is dark on top and fair at the sides so I'm starting to look a bit like a badger,what with the furry face too! Apparently it is a mystery what people's hair will grow back like. It is highly likely that I will change from straight fair hair to curly dark hair (my mother's hair type), although I suspect whatever result will have a heavy smattering of grey.
Thank you to everyone who is continuing to send emails and comments, it's great to hear from you and I apologise if I don't reply to them all.