I had a day full of hospital appointments today, starting with a heart echo at 11am, an appointment with the consultant at 2pm and a session on the pentamadine nebuliser at 3pm. Finally got home at 6pm. All seems to be going well with another minor tweak of my anti GVHD steroids (downwards which is good). Now I'm pretty tired.
I've also spent a lot of time being driven around today, as the echo was in a different location to the other appointments, and had a variety of drivers to match. I was taken in by a Lithuanian driver with very strong opinions on lots of things (mobile phones, GPs and benefit cheats were among those in his firing line!). I just grunted at the appropriate times after a while. He's a firm believer in the medicinal qualities of a good Cognac, though, so it's not all negative! Then there was the retired fireman who only needs 3 hours sleep a night and has achieved more by the time I wake up than I do in an entire day! It takes all sorts.
I am experiencing some interesting side effects from my current list of drugs, in particular a constant taste of salt on my lips, as if I've just eaten something salty. I don't know what is causing it but hopefully it will go away when I stop the steroids. The other is a well known side effect of Cyclosporine which is to grow excess downy hair on my face. I'm beginning to feel a bit like a teddy bear! Fortunately it stops as soon as you stop taking Cyclosporine so it won't be here for ever.
That's all for now, next appointment next Monday so do look in for an update.
God bless all.