Another slightly late post but I think I have a good excuse this time. I had my usual appointment on Monday for bloods and with the consultant, followed by my session on the nebuliser, followed by a trip to Marylebone High Street for a bone scan, followed by a two hour wait to see the consultant there. What a day! I got home at 9pm!
My bloods were fine and I also had the results of another test for the level of leukaemia in my blood. Sadly it has gone up slightly from 1.7% to 2.3%. Nothing terrible but enough for the consultant to put me back on the CML drug I was taking before the transplant, Sprycel. It may seem strange to be a given a drug which was not working for me before but that, of course, was with my old blood. Now I have new blood and there is no reason to think that it won't work with that.
Restarting Sprycel brings me to my other excuse for not posting yesterday as I reacted quite badly to the first dose, ending up in bed most of the day with pretty bad flu symptoms and nausea. I'm feeling much better today, just aching all over and with itchy ears! The good news from Monday is that I have reduced my dose of Cyclosporin again and may be off it soon, and I have been given the go-ahead to get out and about a bit more and even (wait for it) go on public transport! I have been warned that I will catch more colds than I used to but that has to weighed up against getting my life back to some sort of normality. I'd already done a bit of that by going back to church for the first time on Sunday which was lovely.
The only other thing to report is my Look Good, Feel Better session a couple of weeks ago. There were about 15 ladies with various cancers there at a variety of different stages of treatment. We were run through a session on skin care and make up (a bit like teaching your grandmother to suck eggs but I picked up a few tips and an updated approach to my make-up) with numerous therapists to help out. It was very nice to be pampered a bit and to be sent away with a bag of goodies donated by cosmetics companies. Things were a little awkward when we got to the eyes as I was sitting there with my lush lashes and eyebrows, surrounded by women who had neither! I'll definitely miss the super eye lashes when I stop the Cyclosporin.
Next visit to the hospital will be on Tuesday 26th due to the Monday being a bank holiday so I'll update you then.