It is a fortnight now since I started taking Sprycel, the drug I was on before my transplant, and it has been a bit bumpy. As I reported in my last blog, the first day after taking it was pretty bad as I reacted to it with flu-like symptoms. Fortunately that was the worst of it. Since then I have been through a period of aching all over but that is gradually easing and is now just some areas (the soles of my feet for example). It hasn't stopped me from enjoying the fabulous weather though, or having a lovely Easter weekend with lots of visitors.
I had my regular appointment today and it went quite smoothly. The only thing of note is a slightly reduced platelet count compared with last time, probably due to the Sprycel. Dave and I plan a brief holiday next week so I have been asked to go in for another blood test on Friday (yes, THE Wedding Day) to make sure that my counts are not on a downward trend before we go. All else is OK, with no sign of GVHD, and I'm pleased to report that my Cyclosporin dose has been reduced yet again so I am now on one 25mg tablet a day. This is so low that I'm also stopping a drug I have been on to counteract the tendency of Cyclosporin to raise my blood pressure.
Some of you may have heard me mention my friend Michelle, who also has CML and looked like she was heading for a transplant too. She has been given the chance to go on a trial of a new CML drug which, if it works, may mean she doesn't need one. She has been asked to set up her own blog to map her progress, as this is the first trial of this drug in the UK. If you want to see how she's getting on you can read her blog here http://diary-of-a-lab-rat.blogspot.com/. Good luck Michelle, I really hope it works for you.