The Thomas family

The Thomas family
From left to right, Tania, Dave, me and Corina

Tuesday, 26 April 2011

A bit of a bumpy fortnight

It is a fortnight now since I started taking Sprycel, the drug I was on before my transplant, and it has been a bit bumpy.  As I reported in my last blog, the first day after taking it was pretty bad as I reacted  to it with flu-like symptoms. Fortunately that was the worst of it.  Since then I have been through a period of aching all over but that is gradually easing and is now just some areas (the soles of my feet for example).  It hasn't stopped me from enjoying the fabulous weather though, or having a lovely Easter weekend with lots of visitors.

I had my regular appointment today and it went quite smoothly.  The only thing of note is a slightly reduced platelet count compared with last time, probably due to the Sprycel.  Dave and I plan a brief holiday next week so I have been asked to go in for another blood test on Friday (yes, THE Wedding Day) to make sure that my counts are not on a downward trend before we go.  All else is OK, with no sign of GVHD, and I'm pleased to report that my Cyclosporin dose has been reduced yet again so I am now on one 25mg tablet a day.  This is so low that I'm also stopping a drug I have been on to counteract the tendency of Cyclosporin to raise my blood pressure.

Some of you may have heard me mention my friend Michelle, who also has CML and looked like she was heading for a transplant too.  She has been given the chance to go on a trial of a new CML drug which, if it works, may mean she doesn't need one.  She has been asked to set up her own blog to map her progress, as this is the first trial of this drug in the UK.  If you want to see how she's getting on you can read her blog here Good luck Michelle, I really hope it works for you.


  1. Hi Cathy

    Glad it went ok at the hospital. Glad you are going away with Dave. It was lovely to see you at church on Sunday and you looked wonderful and happy.

    Can you just remind me of when i am coming up to see you for a chat and cuppa.

    Take care hun


    Katrina xxx

  2. Lovely to follow your health ups and downs, hopefully more ups than downs now. Does the foot soreness prevent you from walking far, like round the market? See you soon. Love Lynn and Dale