OK, apologies for not updating for two weeks, even though I said I would try to. It has been very quiet and I've just not had anything to report - the rash has been reasonably well behaved and I've had no phone calls from the hospital to tell me to change my drugs so what did I have to say?
Anyway, I did have an appointment yesterday so will give you an update now. One of the main points is that my regular blood counts have dropped a little, but not to a worrying level. This is due to me no longer taking any steroids which were boosting some counts. I have been feeling more tired and easily exhausted in the last couple of weeks so it is a relief to realise that there is a reason for this. I'll have to build up my strength under my own steam now rather than with the help of steroids!
Also, they had the results of the Chimerase test which measures how much of my blood is my old stuff and how much is the donor's. I'm delighted to report that it is all the donor's, which is a very good thing. My blood is now officially A Negative when I was previously O Positive! It's a strange thought that I will spend the rest of my life with different DNA in my bone marrow and blood compared with the rest of my body.
Finally, I have to report a little thing and apologise to my family who are fed up with hearing about it. I was actually complimented on the length of my eyelashes the other day! For someone who has always had short and nondescript eyelashes this is a real treat! Sadly, this is due to the Cyclosporin so will only be temporary but it is good while it lasts. I can also say that I am no longer blond. The hair that is regrowing is definitely much darker (if you ignore the grey) and I gather that is likely to be permanent. I might have to consider getting it coloured for the first time in my life. I'll post a photo soon, when I am feeling brave enough.